Thursday, February 1, 2018

32 Charities Come Together in Rare Disease Day! #GlobalGenes

32 Rare Disease Charities Will Board the Historic LeRoy King Carousel at First-Ever RARE Carousel of Possible Dreams

 
I have written about Rare Disease awareness in the past and continue to support Global Genes to spread the news of fundraisers, updates and more.
 
This year Global Genes will join Festival of Children Foundation and partner up for RARE Disease Fundraising Day in San Francisco on February 28, 2018
 
Here's a bit of background info on the event, the partners and what it's all about.
Global Genes, a leading rare disease patient advocacy organization, and Festival of Children
 
Foundation are proud to partner for the first-ever RARE Carousel of Possible Dreams on February 28, 2018 in San Francisco, at the Children’s Creativity Museum.

The inaugural event is a collaborative effort to support 32 rare disease charities ‘dreams’ by utilizing Festival of Children Foundation’s well-known Carousel of Possible Dreams fundraiser on World Rare Disease Day.
“We are so honored to partner with an exceptional organization that continuously gives back to children and families around the country,” said Nicole Boice, CEO Global Genes. “This is an important time for the rare community. We know this partnership will allow rare charities and families the opportunity to learn how to increase awareness for their disease, while helping raise the much-needed funding for rare families.”
 
The RARE Carousel of Possible Dreams will provide a unique fundraising opportunity for the 32 participating rare disease charities.  Rare Disease representatives will ride the celebrated LeRoy King Carousel over the course of the event to complete their individual pledge drives that will fund defined “dreams” or needs.
 
The dreams range from funding scholarships and educational materials, to supporting family meet-ups, training tutors to work with rare disease children, emergency preparedness, and special customized wheel-chairs among many others.
“Working with Global Genes on this collaborative fundraiser is an incredible opportunity for Festival of Children Foundation“, said Sandy Segerstrom Daniels, founder and executive director Festival of Children Foundation. “We are going to help realize dreams, change lives, bring hope to so many children and families in the Global Genes rare disease community.”     
 
The inaugural RARE Carousel of Possible Dreams will take place on World Rare Disease Day, Wednesday, February 28 from 6 p.m. – 8:30 p.m. at the Children’s Creativity Museum. For more information, to register, or to join a team or donate, please visit festivalofchildren.org/SF18.
For a complete list of participating organizations visit: globalgenes.org/rarecarousel/.
 
A bit more info about Global Genes...

Global Genes is a leading global rare disease patient advocacy organization. The group’s mission is to connect, empower and inspire the rare disease community. Recognized worldwide by the Blue Denim Genes Ribbon™, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide.
 
About Festival of Children Foundation
Festival of Children Foundation is a 501 (c) (3) non-profit organization that serves to bring together and coordinate the efforts of charities, companies and individuals who actively work to improve the lives of children. Festival of Children Foundation gives a voice, guidance and support. 100% of the administrative costs are covered by designated funding, allowing donations to go further in direct support of programs and services that improve the lives of children. 
www.festivalofchildren.org
 
Looking forward to hearing more about this wonderful event! Stay tuned for more...