Global Genes' annual RARE Tribute to Champions of Hope September 16th.
For the 6th year, the tribute will honor rare disease champions from all over the world that face and overcome challenges they face with rare diseases. They like to say its like the Academy Awards for rare diseases.
I have a soft spot for this organization since my dear friend of over 25 years has a child of her own with a rare disease.
I wrote a heartfelt post on this week girl and my friends lovely family last year. You can read that here.
I love to share the opportunity to give back, support or attend such amazing events.
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| PC Global Genes |
More details on the event itself...
With many celebrities and incredible award honoree's at this years event including Sparsh Shah and Gavin Stevens from NBC's Little big Shots, Karan Brar from Disney Channels Jessie and Bunk'd, and Radio co-host, Jill Estoco, from 104.3 myFM Valentine in the morning will be hosting the event. Did you know she has MS?
Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Wow!! ... Global Genes rocks!
It’s a truly amazing organization that began as a grass roots effort and now touches patients all across the globe.
The Tribute award show will kick-off with a performance by 8-year old singer Gavin Stevens, who touched hearts across America with his performance on NBC’s Little Big Shots.
Season 12 contestant of NBC's The Voice, Stephanie Rice, will perform; and viral sensation, patient advocate, and award honoree, Sparsh Shah, will join the line-up of entertainment with his inspirational musical performance and motivational message, that will impact everyone in attendance.
To purchase tickets to the Tribute visit globalgenes.org/2017tribute.
The 6th Annual RARE Patient Advocacy Summit will take place prior to the Tribute to Champions of Hope September 14 – 15 and is an educational conference offering a space for members of the rare disease community to learn, share best practices, create important connections, and help catalyze powerful collaborations, all in an effort to support forward movement in rare disease.
To register to attend the Summit please register at globalgenes.org/2017summit.
The two-day event brings rare advocates from across the globe together culminating with the Tribute award show on Saturday, September 16.
If you are headed to this amazing event please tag us, I'd love to support you too!
Happy Fall Fundraising & Supporting one another for bigger picture,
Penny
Penny
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